DESEAL CONSENT FORM
INFORMED CONSENT FORM
for participants in the European Union of the Deaf’s
DESEAL survey for national deaf associations in Europe
You have been invited to take part in a survey for national deaf associations, which is part of the DESEAL project (Deaf Senior Education for Active Living), funded with support from the European Commission under the Erasmus+ programme.
We (Mr. Frankie Picron and Dr. Goedele De Clerck) are researchers at the European Union of the Deaf (EUD) in charge of organising this survey. So you can take an informed decision about whether to take part, it is important that you understand:
1. What the survey is about;
2. Why your participation is valuable;
3. What the possible benefits and disadvantages are;
4. How we keep your data and information confidential; and
5. What your participation would involve.
This Information Sheet is designed to explain these aspects to you. We are available to provide further information by email or video call if there is anything you want to ask or discuss.
1. What is the survey about?
The project aims to identify the needs of deaf senior citizens in terms of various forms of education and activation (i.e., active participation in society). This survey is particularly oriented towards the views and work of national deaf associations in Europe, and their involvement in training and education for deaf seniors.
2. Why is your participation valuable?
Your answers will help the project team to create an international guide about educating and activating seniors. The international guide will be in the form of a pdf, which will be downloadable from the project’s website (www.deseal.eu), with a summary in International Sign.
3. What are the possible benefits and disadvantages of taking part?
If you decide to participate, you will be asked to answer questions regarding initiatives for training and activities for deaf seniors.
By taking part in the DESEAL survey for national deaf associations, you will not be placed in any situation in which there is a likelihood of physical, mental or emotional harm. We (Frankie and Goedele) are available to satisfy any reasonable request or need you might have.
You will not be provided with any incentive to take part to the survey.
You have – and retain at all times – the right to withdraw yourself and your data from the DESEAL project. You may do so for any (or no) reason and without prejudice. You will be briefed, from the outset, on the procedures for ending your participation, i.e., by simply expressing your free choice to withdraw.
4. How do we keep your data and information confidential?
A data minimisation policy is adopted by the DESEAL project so that no data that is not strictly necessary for the project is collected.
By taking part in the survey for national deaf associations, you will be asked to provide the following information:
The name of your national deaf association, its website URL, and the city/region/country it covers
Data on your personal or professional views or opinions on the activities, training, or initiatives addressed in the DESEAL project will be gathered either in written English through an anonymous questionnaire and/or in sign language through a video or video call.
These data will be collected and processed by the EUD’s research team, namely Mr. Frankie Picron and Dr. Goedele De Clerck. The processing will only be for the purpose of the DESEAL survey for national deaf associations and for carrying out project research activities.
The data you provide by completing the survey and signing this informed consent form will be stored in the EUD’s database premises and accessed only by us (Frankie and Goedele) and other EUD personnel who are specifically authorised to work on the DESEAL project. Unauthorised access is prevented by the adoption of the following security measures: computer files storing your personal data will be password-protected and encrypted through available encryption software.
These data will not be shared with or disclosed to anyone outside the EUD research team, and will not be shared with any other DESEAL project partners . Your personal data will be permanently and irrevocably erased after completion of the DESEAL project.
Any personal or professional views or opinions you might express during your participation are confidential. The only people who will see the information collected will be the above mentioned EUD team. Research reports will not mention any names. We may illustrate the findings through providing anonymised comments or examples, in which case we will ensure that there is no identification possible. The opinions and views you express will not be related or traceable to your personal data, because your data will be processed in a way that stops anyone tracing them back to you.
The research findings will be presented through conference presentations, webinars, and research reports. A project summary will be available on the project website, www.deseal.eu, and on the Erasmus + platform.
All personal data collected and stored within the EUD’s DESEAL project survey for deaf associations, is for the purposes of the project only and will be permanently and irrevocably erased on 30 November 2024, which is two years after the end date of the project (30 November 2022).
5. What your participation will involve if you choose to take part
Participating in the survey takes about 15 to 30 minutes. You will be asked to answer 14 questions regarding education, activities, and initiatives for deaf seniors. You will be able to answer most of these questions by ticking a box. All questions are provided in written English and signed in International Sign. Three of the questions in the survey are open-ended and specifically ask you to describe your views on training or activities, or share information on practices in your country. These questions can either be answered through written English or International Sign.
If you prefer to respond through International Sign, you may either create a signed video and upload it in the response form, or have a conversation with Goedele through a 30-minute video call. To request a video call, write ‘videocall’ in the response form and contact Goedele.De.Clerck@eud.eu. (These instructions are also included in the survey form.)
Participation is entirely voluntary and you are under no obligation whatsoever to take part. No disadvantage or stigma will arise should you decide not to participate.
Thank you for taking the time to read this informed consent form. If you have any questions about any aspect of the DESEAL project, or your prospective involvement in it, please contact:
Dr. Goedele De Clerck
Mr. Mark Wheatley
Telephone: +32 2 280 22 59
Address: Rue de la Loi - Wetstraat 26/15, 1040 Brussels, BELGIUM